Pregnancy was pretty tough as the bigger I got, and the more relaxin there was in my body, the worse my joints became and the more difficult daily life became. Doing what I do as a job (Lead Nurse for Research), I was interested to know what was 'out there' in terms of evidence and advice that I could link in to and keep myself as strong as possible. By only 10ish weeks in to the pregnancy my knees were sub-laxing every few days (almost dislocating). In truth I was scared about what this meant as things progressed. What struck me was how little research there is out there on hEDS in pregnancy.
I went to the gym 3-4 x weekly before pregnancy and so continued this right up until the day before I went in to labour. I did body-balance (tai-chi, yoga, pilates and other strength), daily walking, and joined a pregnancy specific yoga and pilates classes. At 3.5 months I saw my GP as things were worsening joints-wise and to my shock she signed me off work with immediate effect with a view that prevention of my muscles etc and maintenance of my strength was the most important thing. She and other physicians warned me that there was a high liklihood of requiring crutches or a wheelchair toward the end of pregnancy given the speed at which things were deteriorating at this point.
#WhyWeDoResearch - because not having evidence is scary!