#WhyWeDoResearch Campaign
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#WhyWeDoResearch A Strong Light in Social Media by @DerekCStewart OBE [Patient Perspective 12]

12/18/2016

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Happy birthday #WhyWeDoResearch and many happy returns! A bright two year old toddler. No longer a baby. Bursting with energy, full of confidence and incessent enquiry. Opening doors, reaching into cupboards, stretching out to reach and touch the world with brightness, enthusiasm and joy.

It is therefore a great pleasure to be invited to write this post for #WhyWeDoResearch, as we have grasped over an incredible 200 million impressions. Every impression with the potential to light a fire in someone's thoughts and actions to speak up about research.

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I love the tweetchats. I am thrilled by the company and the illumination brought by the enthusiasm, range of discussion and making new friends. Thanks to @ClaireW_UK (Claire Whitehouse) and @keeling_michael (Michael Keeling) for setting it alight.

Light helps us during challenging moments in our lives and the darkest months of the year as we move from the Diwali celebration of light to Christmas with lights in windows that we should take a moment to reflect. 

These days it is the light that illuminates the screens of our phones, tablets and computers providing information, knowledge, messages and virtually everything else. There is a strong and healthy association between light, learning and truth.


#WhyWeDoResearch gives us the opportunities to learn. It gives us the chance to have a big worldwide conversation on such a variety of interests in research related to health and social care. Sometimes that dialogue happens in direct messaging or in quite specific areas of the research world.

#WhyWeDoResearch is a means of bringing together those of us involved in research. We are involved to improve people's health and well being through rigorous research and the application of non-biased evidence.

The challenge therefore, for all of us in research, is that 'post-truth' became word of the year in the Oxford dictionary. It appeared gradually in the general lexicon particularly through the recent electioneering. Evidence and experts were similarly disparaged as of being little value. 

We have confirmation that shows an increasingly strong relationship between research active establishments and improved health outcomes. People would seem to live longer in research active hospitals. Will others believe this to be true. Will our words be believed?

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You can follow Derek's blog here http://derek-online.blogspot.co.uk/

I am a passionate advocate that we have to talk more about research, to help people know where to take part, to reach out to those voices that are seldom heard, to connect with others in face to face meetings and through digital technology. I want therefore to see us reach 500 million impressions, to reach out to new groups and more patients. 

"Lights flicker from an opposite loft" Bob Dylan

I don't really mind whether #WhyWeDoResearch is seen as a campaign, a community, a network, a discussion forum, a dialogue or just a chance to let off steam. The light is on so let's make it brighter, better and seen by even more people.

Many, many happy returns and let the torches shine light on high quality research, evidence and its applications.


You can follow Derek:

Twitter: @DerekCStewart
Blog: ​http://derek-online.blogspot.co.uk/ 
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You can watch the #WhyWeDoResearch milestones and second birthday video by clicking the video clip below...
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NEWS ALERT: We are deighted to announce our new #WhyWeDoResearch AMBASSADOR HUBS. Our first ever hub is @UEA_Health [Professional Perspective 17]

12/4/2016

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In addition to our individual #WhyWeDoResearch Ambassador roles we are delighted on our 2nd Birthday to announce the launch of our "#WhyWeDoResearch Ambassador Hub"

A 'Hub' is created where a number of individuals from one institution, establishment or patient group wish to link together to act as #WhyWeDoResearch Ambassadors. If you would like to create a #WhyWeDoResearch hub, please contact @ClaireW_UK or @keeling_michael

The first ever #whywedoresearch ambassador hub is made up of academics from the School of Health Sciences at the University of East Anglia. We are proud and excited to become a part of this successful, international campaign which started on our doorstep two years ago.

The hub consists of four colleagues, Deborah Harrison, Dr Niamh Kennedy, Dr Nicola Handcock and Dr Kath Mares. You can read about our interests and passions in the individual blogs. All of us want to make a difference to global health challenges in various ways; doing research, publishing findings, creating new treatments and interventions and inspiring new generations of healthcare professionals to love research as much as we do.

We will involve more colleagues and PhD students over the next few weeks and months, look out for us on Twitter @UEA_Health

​Happy birthday #whywedoresearch!  
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@UEA_Health
Dr Nicola Hancock 
Lecturer in Physiotherapy, Acquired Brain injury Rehabilitation Alliance, School of Health Sciences, University of East Anglia
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As a highly specialist physiotherapist and NHS team leader in stroke rehabilitation, I worked as part of an inter-disciplinary team to enhance the lives of people recovering from stroke, from the acute phase through to later stage rehabilitation. Always seeking to develop my knowledge, promote my profession and engage nationally and internationally with colleagues in the field, I served as Chair of the Association of Chartered Physiotherapists for four years and have an ongoing position on the Intercollegiate Stroke Working Party at the Royal College of Physicians, where I am the lead representative for Physiotherapy. Despite this “extra-curricular” activity, I became convinced that I could do even more to enable and assist people with stroke- so it became clear that a research career was calling me, and in 2008, I left a safe leadership position in the NHS to become a full-time PhD student with Professor Valerie Pomeroy and the ABIRA team at UEA. What a change….! 

I finished my PhD in 2013 (Yes, you can do it. You should do it. I did it. Contact me…..), having fulfilled my other ambition to become a Lecturer in Physiotherapy at UEA in 2012. It isn’t always easy to balance the demands of a busy Faculty, the research activity, writing papers and grants and teaching and supporting students (that’s the “understatement of the year” section complete) but I would not change my career pathway for anything. To have had the privilege of working hands-on with people with stroke every day, progressing from junior physiotherapist to team leader, then to use that knowledge as a platform for working with one of the next (nay, the best!) stroke rehabilitation research teams in the world has been fantastic, as well as an enormous responsibility which drives my ambition to help enhance lives even more. ​

But I still have lots to do. Currently I am working the Design Council UK on a project to develop a device to improve the ability to walk after a stroke, and we are preparing a major grant application to support this work. I have just published some of my PhD results (http://www.physiotherapyjournal.com/article/S0031-9406(16)30482-5/pdf) and am working on a couple of other papers. I am about to attend UK Stroke Forum where I will join my colleagues from the RCP in launching the National Clinical Guidelines for Stroke 2016 and the Concise Guide for Physiotherapy
….(and I do have a personal life, promise….I love living in rural Norfolk; walking, running, reading, being with my lovely family and generally trying to embody a healthy lifestyle, another responsibility we health professionals have!) 

http://www.abira.ac.uk/ 
http://www.designcouncil.org.uk/resources/case-study/university-east-anglia

Follow me on Twitter @NicolaJHancock
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Dr Kath Mares
Lecturer in Physiotherapy, School of Health Sciences, University of East Anglia​
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Hello my name is Kath Mares and I am a physiotherapy lecturer and researcher at the University of East Anglia. My main area of interest is around promoting movement recovery in people after acquired brain injury such as stroke. I am particularly keen to work with people who are in the later stages of recovery from stroke and who are back in the community and living at home. My early research focussed on one intervention called Functional Strength Training and I and other colleagues travelled the breadth and depth of Norfolk to deliver this exercise therapy to people in their own homes. I have some great stories from the participants we worked with but one of the things that they all found a challenge was the distances they would have to travel to see their therapists. This got me thinking about how we as physiotherapists can work with people from further afield geographically but still enable them to carry out their exercises.

I am now involved in a project with the clinical therapy stroke team in Norfolk to develop and app (a mobile application for a phone or table for those who are unsure what this is). The app is designed so that the therapists prescribing the exercises can upload these to and so provide better demonstration and instruction of an individual’s exercise programme. This trial is in its early stages and we will only be testing it with people in hospital and under the care of the Early Supported Discharge team now but we have great hopes of developing a much bigger resource that will allow two-way communication between the therapist and their patient. In the long term this may prevent some of the travel that service users have to carry out to see their therapists. 
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I have also been involved in other projects where we are trying to develop innovative devices to help facilitate movement recovery and make it fun! One of these projects was again a fantastic experience bringing together service users, clinicians, software developers and researchers. We started with an idea and a blank canvas and ended up with a prototype ankle rehabilitation device which uses ankle movement to play games on a TV screen. We are now in the process of seeking funding for prototype 2. It’s been a steep but exciting learning curve using my research knowledge to help shape the development of new and innovative rehabilitation devices and the sky is the limit!
 
Follow me on Twitter @Kath1872 

Dr Niamh Kennedy 
Lecturer in Rehabilitation Neuroscience, School of Health Sciences, University of East Anglia

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My background is in Experimental Psychology and Neuroscience, primarily focused on the brain and its influence on behaviour.  After having neurosurgery in my adolescence, I was fascinated to understand the brain better, particularly its fantastic capacity to change and recover which led ultimately to me doing a PhD in this area. By better understanding the brain, I believe that it can help inform us on how to maximise recovery after injury or stroke.  I believe quality research is so important to allow us to delve into the brain and its working but also to use these findings to develop robust trials and provide an evidence base for patients. I enjoy carrying out both small scale studies and being part of large multi-centred trials. As both of these are crucial to the development of research. I am passionate about teaching and helping students see the benefits of research not only to test interventions but to be informed, evidence based professionals that are not afraid of research but embrace it.

I work as part of the ABIRA– Acquired Brain Injury Rehabilitation Alliance team. ABIRA works to enhance the benefits of rehabilitation by (a) facilitating implementation of research findings into practice and (b) undertaking primary research to add new knowledge. Members of ABIRA are drawn from academic, NHS and independent sector settings around Norfolk and Cambridgeshire. ABIRA’s purpose is to link research and clinical practice to optimise the benefits of rehabilitation for people who have sustained a brain injury through disease or trauma. I am involved in research to better help us understand the brain and its impact on recovery. 
 
https://www.uea.ac.uk/health-sciences/people/profile/niamh-kennedy
See more on ABIRAs work at http://www.abira.ac.uk/ or @ABIRAgroup
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Follow me on Twitter @dr_niamh

Deborah Harrison
Senior Lecturer in Occupational Therapy, School of Health Sciences, University of East Anglia

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I am a qualitative researcher, mainly because I’m nosey and like to find out what people really think and feel. In health research the lived experience of service users is vital knowledge in making people’s lives better. As an occupational therapist my passion is to help people to get the most out of life and to have every opportunity to participate fully.

​I teach qualitative research to students who are studying on our pre-registration programmes in occupational therapy, physiotherapy and speech and language therapy at both undergraduate and Masters level. I enjoy facilitating their curiosity about what helps people and what doesn’t. I like to push them to be really critical about what they read in research papers. I also supervise student dissertations in my main areas of interest, mental health, combat injury and occupational science. I often remind students that although we might observe that certain interventions have benefit, what we don’t know is whether people would have improved anyway over time, or whether something else would have worked more effectively. We can’t spend vital public funding on interventions just because we think they help.
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In 2015 I received a UEA Community Engagement Award for my voluntary work with military charities providing free consultancy on digital media and occupational therapy. I currently work with The Baton; supporting the military family - www.thebaton.co.uk and Surf Action; providing evidence-based interventions for people who have served in the Armed Forces and their families - www.surfaction.co.uk. We need much more research to help us to understand what really works to support people who have served in the Armed Forces, particularly people living with Post Traumatic Stress Disorder. There’s a lot of charities and organisations that mean well and they are providing opportunities for people to participate in wonderful activities, but we don’t really know, especially in the long term, if this funding is being spent wisely.  

Why I teach research; to inspire the next generation of healthcare professions to be the very best evidence-based practitioners.
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Why I do research; to ensure that people who have served their country get the very best help and support to have a good life free from the trauma of combat.
 
Follow me on Twitter @DebbiiHarrison


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    Introduction to our guest blogs

    We are delighted to host guest blogs from our fantastic followers. Blogs come from patients, members of the public & from healthcare professionals. They focus on why people are involved in research, what it means to them and what they would like to see happen in the future of research.

    Occasionally, we also host 'Spotlight on...' months - in these months you will see a blog per week from patients, public and staff centred around a specific topic / illness / disease area. We also host a tweetchat on the topic during the same month. Follow #whywedoresearch on twitter to keep up to date with these.

    If you would like to guest blog for us, please contact @ClaireW_UK or @keeling_michael via twitter

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